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Zokinvy (lonafarnib)Highmark

Hutchinson-Gilford Progeria Syndrome (HGPS, Progeria)

Initial criteria

  • age ≥ 12 months
  • diagnosis of HGPS (Progeria)
  • documentation of mutation in LMNA gene
  • body surface area (BSA) ≥ 0.39 m2
  • requested dosing regimen aligns with FDA-approved labeled dosing regimen (refer to Table 1)

Reauthorization criteria

  • age ≥ 12 months
  • diagnosis of HGPS (Progeria)
  • documentation of mutation in LMNA gene
  • body surface area (BSA) ≥ 0.39 m2
  • requested dosing regimen aligns with FDA-approved labeled dosing regimen (refer to Table 2)

Approval duration

initial up to 4 months; maintenance up to 12 months