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Joenja (leniolisib)United Healthcare

activated phosphoinositide 3-kinase delta syndrome (APDS)

Initial criteria

  • Diagnosis of activated phosphoinositide 3-kinase delta syndrome (APDS)
  • Diagnosis has been confirmed by the presence of an APDS-associated genetic variant in either PIK3CD or PIK3R1
  • Documentation of other clinical findings and manifestations consistent with APDS (e.g., recurrent respiratory tract infections, recurrent herpesvirus infections, lymphadenopathy, hepatosplenomegaly, autoimmune cytopenias)
  • Patient has a history of trial and failure, intolerance or contraindication to current standard of care for APDS (e.g., antimicrobial prophylaxis, immunoglobulin replacement therapy, immunosuppressive therapy)
  • Prescribed by one of the following: Hematologist OR Immunologist
  • Patient is 12 years of age or older
  • Patient weighs greater than or equal to 45 kg

Reauthorization criteria

  • Documentation of positive clinical response to Joenja therapy (e.g., reduced lymph node size, increased naïve B-cell percentage, decreased frequency or severity of infections, decreased frequency of hospitalizations)
  • Prescribed by one of the following: Hematologist OR Immunologist
  • Patient weighs greater than or equal to 45 kg

Approval duration

12 months